News & Events

NHF New CEO

04/27/2009

Below is a very interesting article about Val Bias the new CEO of the National Hemophilia Foundation. 

Overview:

Priorities as the new CEO of the National Hemophilia Foundation:

1.  Patients are currently being targeted for limitations and reductions. 

2.  Access to HTC's is becoming limited, and factor is being made unavailable to patients in need.

3.  Will strive to renew old relationships in Washington D.C. who have typically worked with the bleeding disorder community. 

4.  Have met with the FDA and will plan other meetings to discuss cost effective care options.

What He hopes to accomplish:

1.  Create a "responsive service-oriented national organization that provides the leadership to achieve our collective goals as a community."

2.  "Provide leadership for everyone who supports patients and our standard of care."

Legislative Priorities:

1.  Raise all lifetime caps .

2.  Provide increases based upon inflation.

3.  Create awareness, and media coverage.

 

To read this article in its entirety click the link below:

Interview with Val Bias

 

Kilbourne,Kim "interview with Val Bias" The Source. 2008.

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